8. Alexander Technique

Using Alexander Technique to Relieve the Stress of Illness

In Blog 7 I said I would discuss Alexander Technique as part of my holistic approach to beating breast cancer.

In addition to helping people with long- term back pain and Parkinson’s Disease, this non-invasive therapy may also help people deal with insomnia, headaches and stress, all of which can be associated with chemotherapy treatment.

The main principles of the Alexander Technique are:

  • “how you move, sit and stand affects how well you function”
  • “the relationship of the head, neck and spine is fundamental to your ability to function optimally”
  • “becoming more mindful of the way you go about your daily activities is necessary to make changes and gain benefit”
  • “the mind and body work together intimately as one, each constantly influencing the other”

Whilst Alexander Technique is usually taught over a number of sessions, my teacher told me one of the most useful things anyone has ever told me and I’m going to share it with you! He simply suggested that I lie flat on the floor with my knees hip-width apart and bent at the knee with a book (say 3cm deep) under my head every day for about 15 minutes. Just lie there and see what happens, he said.

Naturally I was a little cynical, but gradually, over a period of weeks, my body somehow evened out – I could feel it click-click-clicking into shape. Now, with the additional benefit of a few lessons, I find that my attitude to posture and movement has totally changed, and I can also use the Technique to relax me and help me sleep in almost any situation.  Amazingly, I can even head off migraines, which have plagued me for years.  I really recommend Alexander Technique as a way of managing stress both in sickness and in health!

Thank you for reading and for getting in touch with your stories and comments, it’s great to hear from people who are going through similar experiences.

Della x

Disclaimer:

The information contained in this post or any other post on this blog is based on personal experience and should not be viewed in any way as medical or other advice. If you are considering fasting for chemo, please consult your healthcare provider.

Copyright © 2015 Johnson

7. The Emerging Principles of Fasting for Chemo

Because I have just started the next phase of my chemotherapy regime– four doses of Accelerated Taxol every two weeks – it’s impossible to compare it with my experiences during EC chemotherapy.   But my approach to fasting remains the same and this week I discuss my emerging three principles of Fasting for Chemo.

Muscle and Joint Pain Presents Challenges

Receiving the Accelerated Taxol infusion (this word makes it sound like a nice cup of tea, which I can assure you it was not!) was harder for me than receiving the dose of EC chemotherapy, but the two days afterwards were much easier and required almost no prescription drugs to mitigate the side effects. This meant no rollercoaster ride of drug-induced ‘wild weasel’ highs (as my partner affectionately calls them), followed by crashing ‘sea cucumber on the bottom of the Mariana Trench’ lows. This was very welcome.

The main challenge for me this time has been muscle and joint pain and numbness (peripheral neuropathy), which started about 36 hours after treatment. This pain occurs when the chemotherapy agent damages the fast growing lining of the blood vessels and capillaries that feed your nervous system. They then become ‘leaky’ which puts pressure on the nerves and causes pain, especially in the joints. This pain was described to me beforehand as being like ‘flu like’ aches and pains. I personally experienced quite severe pain on days 2, 3 and 4. If you are facing Taxol treatment, do make sure you are sent away with some strong painkillers in the event you experience this unpleasant side effect.

Digestive System Relatively Robust

With the exception of a six hour episode of digestive system disturbance and a random vomiting episode yesterday (likely caused by inflammation of the digestive system), I have experienced little or no nausea and at the present time my digestive system is holding up well.  I am still taking omeprazole to control acid production in the digestive system, and was prescribed domperidone to take as required. I also find Silicol Gel is helpful.

Emerging Fasting for Chemo Principles

My emerging Fasting for Chemo Principles, which I have developed whilst writing this blog, and will continue to test over the coming weeks, are:

  1. 350 calories-a-day for six days
  2. Break fast by eating little and often
  3. Watch for warning signs

Principle 1: 350 calories-a-day for six days

For my latest chemo session, I stuck rigidly to 350 calories-a-day for two days prior to treatment and four days after.  I ate high quality protein at every meal along with low calorie but high fibre vegetables.  I didn’t eat anything sweet (including fruit and sweet vegetables), nor did I eat any form of bread, potato, pasta, or other carbohydrate that ultimately breaks down into sugar.

I’ve included a few days’ menus here to give an idea of what I ate, including some ideas of what to eat when out and about.

Day -1 (day before treatment)
Mealtime Menu
Breakfast 1 organic free-range egg and mushroom omelette with fresh parsley
Lunch Smoked salmon and egg protein pot
Evening Meal 50g chicken with Bob Granleese’s Pot-Roast Cauliflower from the Royal Marsden Cancer Cookbook and 50g green beans

 

Day 0 (day of treatment)
Mealtime Menu
Breakfast Vegetable and pea protein Nutribullet smoothie
Lunch
Evening Meal 150ml Cauliflower soup using leftovers from yesterday’s Pot-Roast Cauliflower from the Royal Marsden Cancer Cookbook
Day 1
Mealtime Menu
Breakfast 1 organic free-range egg and mushroom omelette with fresh parsley
Lunch 150ml Celeriac Soup, with Coconut, Lemongrass and Ginger from the Royal Marsden Cancer Cookbook
Evening Meal 20g smoked mackerel, 30g carrot salad, 20g Parsons Pickles Laverbread
Day 2
Mealtime Menu
Breakfast 100g plain yogurt
Lunch 150ml mushroom and thyme soup
Evening Meal 100g turkey breast baked with smoked paprika, ratatouille (50g), grated carrot salad

Drinks:

To support my digestive system, I try to avoid acid-generating caffeinated drinks such as tea and coffee and replacing them with redbush tea and other herbal teas (my favourites are Eleven O’Clock and Yogi Teas), and coffee substitutes like Barleycup.  Avoid fruit juices and replace with water. On the one occasion water became unpalatable, I tried weak no sugar added squash to keep me hydrated. I avoid carbonated drinks as these are too aggressive on the digestive tract.

Principle 2: Break fast by eating little and often

In a way, the six days of strict fasting are straight forward – I carefully measure my calories and eat them at the appropriate time. But, in my experience, breaking fast is the tricky bit. You see, the chemotherapy agents are all gradually excreted from the body and the length of time this takes varies between individuals. As an example, 50% of the drug Taxol will be excreted between 3 and 51 hours after treatment. 3 and 51!! This is quite a variation… The more drug you have in your body, the more side effects you might experience because, as you eat food, the cells are stimulated to divide and grow, which triggers the chemotherapy to destroy them, and this in turn causes side effects such as nausea and general illness.

So whilst it’s tempting to FEAST when I break my fast, personal experience now tells me that eating little and often really is the key to ensuring I don’t overload my system and trigger nausea and general feelings of illness. I can still eat tasty and rewarding things, I just have to somehow avoid diving into that bowl of mashed potato!

Principle 3: Watch for warning signs

After I have eaten a little meal, I find it’s best to wait 1-1.5 hours after eating to see how my body responds. If I feel sick, or develop the unmistakable sensation of chemotherapy at work (for me this is a tingly, acidic, unpleasant sensation all over the body accompanied by fatigue), I know I may have eaten too much and might want to consider waiting a while before trying again. I gradually build my diet up from full fast in this way, and try not to be disappointed if I have to take 1 step back to take 2 forward.

Next Time…

I’m really glad I can break fast now because, as you can see from the picture, my pears are about ready– it’s been a bumper harvest this year – so I will be enjoying those over the next few days…

Next week I will be in fasting mode again! Following on from my short piece on mindfulness last week, and in the spirit of sharing other aspects of my holistic approach to beating breast cancer, I’m also going to discuss my approach to Alexander Technique as a way of managing stress during illness (and health!).

Thank you for reading and I hope you’re well. If you have any information or stories relating to fasting for chemo, please do get in touch.  I will be adding a ‘further reading’ page so look out for that!

Have a good week.

Della x

Disclaimer:

The information contained in this post or any other post on this blog is based on personal experience and should not be viewed in any way as medical or other advice. If you are considering fasting for chemo, please consult your healthcare provider.

Copyright © 2015 Johnson

6. A Mindful Approach

A Calm Digestive System and Encouraging Scan Results

Over the last week I’m pleased to report that the inflammation reported in my last blog (9th September 2015) has subsided, with the help of Omeprazole, and I’m gearing up for the next session of chemotherapy tomorrow (Thursday 17th September).

As I will be starting a new drug (Accelerated Taxol) on 17th September, it will be impossible to compare side effects with the previous weeks, but I plan to follow the same regime (350 calories a day for 2 days prior and 4 days after chemotherapy treatment). This time, however, I will be keeping starchy carbohydrates and sugar to an absolute minimum after breaking fast, in an attempt to protect my digestive system.  I will report back next week!

I had a second scan today and I’m happy to report that the tumours appear to have shrunk by about 50% overall since the beginning of treatment. I am so grateful for this good news and cannot imagine how it must be to receive less positive scan results.

Sample Fasting Recipe: Baked Cod with Salsa Verde and Kale

To give you an idea of the kind of meals my partner (who is fasting for 48 hours in support each time) and I are enjoying, I’m sharing this tasty recipe for you to try.

Baked Cod with Salsa Verde - a tangy, tasty fasting recipe for you to try!
Baked Cod with Salsa Verde – a tangy, tasty fasting recipe for you to try!

Serves: 2 people

Calories: 160 per serving

Ingredients

  • 2x 100g cod fillets
  • Juice of half a lemon
  • 100g kale (or spinach) chopped
  • Salt and pepper

For the Salsa Verde

  • A handful each of fresh parsley, basil and mint
  • 2x anchovy fillets
  • 1 tsp dijon mustard
  • ½ tbsp red wine vinegar
  • Dash of olive oil
  • Water to taste

Method

  1. Preheat the oven to 180⁰C (fan) or 200⁰C (non-fan) or Gas Mark 6
  2. Blitz the ingredients for the Salsa Verde in a food processor, adding water slowly until the sauce is as smooth and thick as possible
  3. Using a pastry brush, apply a tiny bit of olive oil to the cod fillets, then season, and squeeze over the juice of half a lemon
  4. Bake the cod fillets in a hot oven for 5-7 minutes or until the flesh is milky white in colour and flakes nicely
  5. Steam the kale for 5-7 minutes or until tender
  6. Serve the cod on a bed of kale with the Salsa Verde on the side or drizzled over the top, and enjoy…

A Mindful Approach

The simple act of paying attention and being in the present can be incredibly powerful and has now become mainstream.

My approach is inspired by the work of Jon Kabatt Zinn, PhD, founding Executive Director of the Centre for Mindfulness in Medicine, Health Care, and Society at the University of Massachusetts. He has advised the UK government on mental health policy and has been one of the leaders of dialogue between science and Buddhism. I was introduced to his work by the excellent team at the Barts Hospital  Chronic Fatigue Service in London.

If you have the time and inclination I recommend his book, Full Catastrophe Living, or his meditation CD, Mindfulness for Beginners. The great thing about his work is it is very grounded and evidence based.

But if you don’t have time to read his work, here is my simple take on it. I boiled it  down into the PLANNTB acronym  – seven simple words or attitudes that will help you pay attention and be in the present…. will help you cultivate the power of mindfulness.

  1. Patience – with yourself, with those around you, with your situation;
  2. Let go – of stress, of worry, of tension;
  3. Accept – your situation, it won’t last forever, this is just your reality for the time being;
  4. Non striving – you don’t need to be anywhere or anyone else, just be comfortable in your own skin;
  5. Non judging – don’t judge yourself or those around you, what they say or what they do;
  6. Trust – your body to heal itself, to take care of you.
  7. Beginner’s Mind – approach each day afresh and remember that even the most wise Buddhist spiritual leaders will tell you that they know nothing.

The key here is really meaning the words, really putting them into action. I am finding I can face almost anything with access to the PLANNTB – I hope it is of use to you.

Thanks again for reading. Do get in touch if you have experience of fasting for chemo you would like to share!

Della x

Disclaimer:

The information contained in this post or any other post on this blog is based on personal experience and should not be viewed in any way as medical or other advice. If you are considering fasting for chemo, please consult your healthcare provider.

Copyright © 2015 Johnson

 

5. White Blood Cells Rally whilst Digestive System Comes Under Pressure

Digestive System Under Pressure

In Blog 4, I updated you on the symptoms I had experienced during the week following my fourth and final EC chemotherapy session. These included nausea and gastrointestinal (GI) disturbance for the first four to five days following treatment.

One week on and I am still making good progress, although things have not been as smooth as I was hoping for!

In addition to nausea and GI disturbance during the first 4-5 days after treatment, the significant side effects I have experienced after this final EC treatment now include:

Side Effect Timescales Norm Management
Mucositis (inflammation of the digestive system) Started day 50 of chemotherapy regime According to the NHS, the symptoms of mucositis would “usually begin 7 to 10 days after you start chemotherapy” Omeprazole

Gaviscon

Liquorice tea

Mouth Soreness Started day 74 of chemotherapy regime According to Cancer Research UK, this symptom can occur “about 5 to 10 days after you start treatment” Home made salt / bicarbonate of soda mouthwash

Bonjela  

The side effects of mucositis and mouth soreness would normally be expected to start around one week after the beginning of chemotherapy, suggesting that there may be a cumulative impact of treatment. In which case, whilst these side effects are extremely unpleasant, I am relieved they have only started now.

White Blood Cells Rallying

Chemotherapy can reduce the number of white blood cells in your body, which we all need to fight infection.

In 2014, researchers reporting in the journal Cell Stem Cell (published by Elsevier) reported that “periodic fasting may combat … chemotherapy-induced … changes in immune cell function by replenishing stem cells in the blood”. This means that your white blood cells effectively ‘go to sleep’ during fasting. After you break your fast, the white blood cells wake up with a vengeance and can, in theory, target the cancer cells more aggressively resulting in an improved tumour response to chemotherapy treatment.

So, I was delighted to hear that a blood count report carried out on 25th August 2015 showed I have a normal white blood cell (4.2×109 /L) and neutrophil count (2.0×109/L).

My first ultrasound scan showed a tumour reduction of about 20% after just two chemotherapy sessions.

Fasting for Taxol

I have now completed all four EC chemotherapy treatments and now have just four Accelerated Taxol treatments ahead, before surgery towards the end of the year and radiotherapy thereafter.

So, next Wednesday I’ll be in full on fast mode again – 350 calories a day for 2 days prior and 4 days after chemotherapy treatment. This time, however, once I have broken fast, I will be trying to keep starchy carbohydrates and sugar to an absolute minimum in an effort to protect my digestive system. Of course, I will report back to you how it is going.

Next time I’m also going to introduce mindfulness as an approach to handling the psychological challenges of cancer.

Thanks for reading. I hope this information is useful to you. Do get in touch if you have experience of fasting for chemo you would like to share!

Della x

Further Reading:

Fasting may protect against immune-related effects of chemotherapy and aging

Disclaimer:

The information contained in this post or any other post on this blog is based on personal experience and should not be viewed in any way as medical or other advice. If you are considering fasting for chemo, please consult your healthcare provider.

Copyright © 2015 Johnson

4. Cautiously Optimistic…

In Blog 3 I reported the side effects I had experienced when I was more relaxed with my fasting regime, which included nausea  for 11 days; gastrointestinal disturbance; dry and cracked skin; sleep disturbance; shooting pains; watery eyes; and fatigue.

It is now only seven days since I underwent the last of my four EC chemotherapy sessions and I am very happy to say I’m recovering well. In fact, I think this has been the best of the four sessions, although each has had its very different charms!

Specifically, the side effects I have experienced to date after this final treatment include:

  • Nausea whilst the chemotherapy is at its most active in the body (4 days after treatment)
  • Gastrointestinal disturbance whilst the chemotherapy is at its most active in the body (4-5 days after treatment)

So… what went right? 

There are two aspects I want to discuss with you today: the drug regime I am following, and my fasting regime.

The Drug Regime: A 42% reduction in ‘core’ antisickness drugs between treatments 3 and 4

Firstly, I want to be very clear about the prescription drug regime I am on.

Whilst we will never know for sure if the positive impacts I am reporting are due to the drug regime… or the fasting … or indeed another unknown unknown… at least if I am transparent about the drugs I am taking you can read and take a view.

I have been prescribed a cocktail of drugs to manage the side effects of the chemotherapy (for 3 days during each treatment):

Core Antisickness or Anti inflammatory Medication

  1. Domperidone
  2. Ondansetron
  3. Dexamethasone
  4. Aprepitant

Other Medication

  1. Lorazepam
  2. Omeprazole
  3. Laxido

Of course, it is impossible to draw conclusions from one person’s experience outside the confines of a controlled experiment, but to try to illustrate the very real improvement in symptoms I have experienced I would like to draw your attention to this very simple comparison:

  • During the first seven days of EC treatment 3, when my approach to fasting was more relaxed, I took a total of 50 of the ‘core antisickness’ tablets. In addition, on days 7 and 9 respectively I was prescribed Cyclizine and then Omeprazole to cope with gastrointestinal inflammation and nausea, which lasted well into the following week.
  • During the first seven days of my latest EC treatment 4, when my approach to fasting has been much more strict, I have taken a total of only 29 of these ‘core’ tablets. As of today, I am taking 1x Omeprazole daily but no other medication apart from the occasional over the counter indigestion tablet.

The reduction in the number of core antisickness drugs taken for the first seven days of treatment 4 compared to treatment 3 is 42%.

The Omeprazole is clearly having a positive impact in protecting my gastrointestinal system, but there could be more at play here…

The Fasting Regime: 350 calories a day for 6 Days

So, now I’ve come clean, so to speak, about the drugs regime I am following, I want to update you on the fasting regime I followed over the last week.

Whilst in my last blog I indicated I would increase to a maximum of 500 calories in the final 48 hours of my fast, I was so concerned about the potential side effects of the chemotherapy that I decided to fast as rigorously as I could. So, I ate a strict diet of 350 calories per day for 48 hours before treatment until 96 hours after.  I avoided carbohydrates including fruits and starchy vegetables and ate small amounts of protein with low calorie vegetables. I bulked my diet up with a natural fibre drink.

It was not easy. More than anything it’s just a bit dull, especially when your partner and mother are tucking into roast dinner on a Sunday evening!

But now I feel I am reaping the rewards.  At this point after treatment 3, I was still taking antisickness pills and had just been prescribed Cyclizine to handle long running nausea. The gastrointestinal disturbance had not even begun yet!

Today my appetite is healthy, food and drink tastes good, and I am eating all the things I love. The next few days will be crucial. Next week I will update you on progress and any additional side effects, which will hopefully be minimal. I will also talk about an aspect of fasting I have not yet covered in this blog – the potential impact of fasting on tumour response during chemotherapy.

I hope you find the information here useful. Do get in touch if you have stories or information to share – I’d love to hear from you.

Della x

Disclaimer:

The information contained in this post or any other post on this blog is based on personal experience and should not be viewed in any way as medical or other advice. If you are considering fasting for chemo, please consult your healthcare provider.

Copyright © 2015 Johnson